08/21/2009

Today, they stopped giving Mackenzie blood products (plasma, platelets...) This is really good news cause it means her DIC is getting under control. DIC more times than none is fatal, but our lil mac has once again beat something else. Her levels still aren't as high as they should be but the doctor wants Mac to do it on her own, i guess they do better in the long run that way. The infectious disease team found out she has staph infection from her open abdomen and in her blood. The antibiotics she has been on cover that though, and all signs show that that is also going away. They have been coming down on the pressure on the ventilator, which is good cause she doesn't need all that help. So other than that there isn't really much to report. They're not gonna really make any changes till after they close her up which is looking to be sunday possibly. After this they can start to discuss taking her off the ventilator and taking that dumb tube out of her nose. Although she seems to like sucking on the tube that's her mouth from the ventilator ha. This is also a good sign, cause a lot of times babies have problems eating by mouth after something like this. There are many kids who require some type of therapy. Especially newborns cause they are used to being full without eating. Mackenzie is used to eating and it's only been a week since she last ate so that is all good. But it will also be awhile before they try feeding her by mouth. Dr. Lee also told us That she will go home with her stomach still not fully healed. Because he won't close the skin, this will take several months to heal on it's own. She will also come home with the G-tube and what's called a broviac, which is a long term iv line that she will receive her TPN through until she is weened off. So we will now be mini nurses at home lol. Lucky us have a good friend that took care of Mackenzie while she was in the NICU, and he has offered to help with anything once we get her home. Well keep praying and sorry for those of you who were looking for this last night. Have a blessed day.