08/28/2009

Hello, sorry for the delay on updating the blog. Well, since the other day, they have not taken the breathing tube out. But they have inserted the broviac yesterday. So i think i explained the broviac but just in case, it is basically a very long term IV. It is in her chest just above her left breast. We will use this to supplement with TPN with what ever she doesn't get out of her feeding G-Tube or by mouth. So this will be in anywhere from 3 months to 5 years or more it all depends on how well she does eating, this is also the same with her G-Tube. The good thing is that they can also take blood out of this so there is no more poking her all the time. The tough part will be we have to be very careful when she gets home to not get this infected. It is very important that we take the best care of this, as the doctor put it this is her life line, and this will now be a full time job plus. So we will have to hire some sort of in home nursing care when she comes home. We will know how to take care of her and do everything we need to but, we can't change certain things plus blood work needs to be taken on a regular basis, and her feeding needs to be evaluated on a weekly basis to decide on if we increase or decrease her feeds. So, anyone planning on visiting, be advised that clean hands are important and purell will be provided as will gloves or masks if necessary. Her wrist, if you remember the arterial line damage, has healed up quite well, although there is still a good probability she will need plastic surgery. She also had two small bowel movements today, which is an awesome sign that everything is working good. Speaking of poop...i guess we will also be changing diapers a lot more frequently, she will be going a lot more and babies like this have a tendency to develop bad diaper rashes, and we don't want that. So the plan for the next few days i guess is to start weening her off the pain meds and hopefully getting the breathing tube out. The trouble with taking the tube out and keeping her on the pain killers is that small babies tend to get real shallow breaths and not get the proper oxygenation. I believe that we may be looking an earlier return home time than originally planned. Once she starts feeding i believe they will be ready to send her home. Sorry again for the few day delay, and now for the long entry, but have a great weekend and god bless.

And their prayer offered in faith will heal the sick, and the Lord will make them well. And anyone who has committed sins will be forgiven. Confess your sins to each other and pray for each other so that you may be healed. The earnest prayer of a righteous person has great power and wonderful results.
James 5:15-16